Hello Cruel World
Tuesday, August 18, 2009
 
Friend's Stroke: shock, horror, confusion

A very good friend is ill. For years he's known of and been treated for idiopathic hypertension. Seems to run in the family. Sometimes crazily high BP; rather drug-resistant, despite a good diet and definitely not being overweight. So over time many, many tests looking for causes, trying different drugs. It looked under control with diet, exercise, drugs. All either free, or at least affordable, with Australian Medicare and PBS (Pharmaceutical Benefit Scheme). Dentistry a different story.

He's been nagging me to get off my tail and go off to enjoy myself because of my probable future bouts of cancer, and was angry that I hadn't managed anything during the recently-ended remission. So I did head off for a weekend to Canberra (details posted separately), got off the train on Monday afternoon and found his partner, another friend, waiting on Central Station Concourse.

On the weekend a blood vessel burst in his head. Ambulance straight to our local, excellent, hospital. Tests, scans, operation, ICU, 'nother operation adding 'nother head-tube, ICU, re-scans; 2 visitors at a time. He's still unconscious/under sedation. The medistaff are helpful, kind and fairly communicative. I'm trying to give whatever practical support his partner may need (food, laundry, music he or she might like, books for waiting time, ** any aid suggestions welcome **) and taking spells at bedside.

It's fearful and deeply saddening to see him half-head-shaved, tangled in an ugly reticulation of lines and arcane wires and tape and tubes. Fearful for his easy physicality and fierce intelligence; fearful remembering despair and depression that came with my own pain, weakness and struggles with disabilities in my own illnesses. But, thank Whitlam & Co., all Labor governments, and continuing general Australian public opinion, we don't fear financial disaster too, nor being thrown out/unplugged for non-payment. Thinking of that because I'd been following & commenting a little in the debate in the USA on the problems in their health care, particularly the insurance & payment arrangements.

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Sunday, June 21, 2009
 
Journeying

From Trip to Minneapolis (June 2009)

Philosophical observations (formatted as poetry)

Train views are like water,
always the same, changing always
fleeting, glimpsed, gone.

       — Jo Walton

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Thursday, May 28, 2009
 
Hand-Foot Syndrome – cont. Another side-effect

Cancer drug erases fingerprints
Travel warning with capecitabine (Annals of Oncology: Vol 20, No 7, p. 1281)
A patient who took a drug for cancer lost his fingerprints, which caused him to be detained for hours when he tried to visit the United States, according to an unusual case reported on Wednesday. The patient was unaware the treatment had wiped out his fingerprints.
The 62-year-old patient had been taking capecitabine, a follow-up drug for chemotherapy for cancer of the head and neck, Singaporean specialist Eng-Huat Tan and colleagues recounted in a letter to the British journal Annals of Oncology.

Capecitabine's side effects include inflammation of the palms and soles of the feet. The skin can peel, bleed and develop ulcers, and with time can cause fingerprints to be eradicated, Dr Tan said. … "He was detained at the airport customs for four hours because immigration officers could not detect his fingerprints." … Mr S. was eventually allowed to enter… He was advised to travel with a letter from his cancer doctor to explain his fingerprint-free condition.
The report urged patients who are put on long-term courses of capecitabine to be aware of the unusual risk. [AFP]
News Links:
Travel warning with capecitabine (Annals of Oncology: Vol 20, No 7, p. 1281)
Cancer drug wiped patient's fingerprints (Aust ABC News)
Drug erases fingerprints, causing immigration drama (SMH)
Cancer drug capecitabine causes patient to lose fingerprints and be detained by U.S. immigration
(The Medical News)
Cancer Drug Causes Patient To Lose Fingerprints And Be Detained By US Immigration (Science Daily)
Side Effect of Drug Capecitabine Is Fingerprint Loss (CancerQuest)
Cancer patient lacking fingerprints held by US customs (The Family GP)
Cancer drug causes patient to lose fingerprints and be detained by US immigration (e! Science News)
Cancer drug erases fingerprints (BBC News)

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Tuesday, March 17, 2009
 
Connexion

thinking on the traveling life

elisem.livejournal.com/ 1426047.html
(I'm not sure where this is going to go, but I have to write it right now. Guess we'll find out when we get there.)
...
Part of being suited to it is something I love, and part was something I feared for a long time. The part I loved is something I got to enjoy years later when I took my Great North American Railroad Expotition. Thirty days and more than thirteen thousand kilometers is a bit of a journey. I did it all with a purse and a carryon bag …
The part that I feared was how easy it was to let go and move on. … I started to worry that I wasn't capable of sustaining any kind of close friendship. I wondered if maybe I was just one of those rootless people who was supposed to wander the earth....…
Anyway, I'm still not entirely sure exactly what it was I was setting out to tell you here, but it seemed important to write it down. …
I'll be pondering this some more. Thanks for listening.
"I'm not sure where this is going to go"
Kind of says it all.

Working on a lot of issues about connections, roots, memories & my own posterity. Am I building myself into my own pyramid before I'm dead?

But a lot of the world's problems are from people losing wise memories, lessons from pain. Except a lot of the world's problems are from people hanging onto memories of pain & bitterness & hate …

Working on a lot of issues …

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Friday, May 23, 2008
 
Takin' a Trip

My friends are looking out for me. They took me for a couple of days to the Southern Highlands of New South Wales — see Flickr set "Southern Highlands Visit, May 2008"

Panorama

(large image)Panorama of Countryside near Towrang

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Sunday, September 09, 2007
 
Michelangelo's Pietas (sculptures of and about mourning)


The extraordinary Bandini Pietà (aka the Deposition) is in Florence, or there's the much more famous, much earlier, Pietà tucked behind heavy security barriers up towards the doors at the back of St Peter's Basilica in Rome. (There's another, even more extraordinary, fragmentary, late Pietà that you can experience in the Sforza Castle at Milan.)

UPDATE: Anita Roddick Dies

Guardian story

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 / . Lives in Australia/New South Wales/Sydney, speaks English. Eye color is hazel. I am what my mother calls unique. My interests are photography, reading, natural history/land use, town planning, sustainability.

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Australia, New South Wales, Sydney, English, photography, reading, natural history, land use, town planning, sustainability.