Hello Cruel World
Saturday, November 21, 2009
 
Burial & other body solutions

BTW, can anyone help, or point me towards help, with information on the usefulness of bodies with metastatic cancer for assorted organ transplants. Would cornea or skin be possible, if nothing else?
Alternatively, should I try contacting various medical schools or anatomy museums to find if they'd be interested in a massively-surgically-altered specimen as an example? Not sure about 'plastination'.

Would have for all these to make sure to, say, shave hair & take some nail clippings for modest burial. Wonder if anyone'd like to try some Victorian-style hair jewellery?

If it appears beforehand no-one wants body or its parts, I'm hoping for a "natural" style burial on a rural hillside I own. There's a polished stone & fossil necklace I also own called 'Drowned in Stone' that's already set aside to wear. We can tuck part of my partner's ashes in too.

(Cunning plan is for a comfy, back-supporting, scoop-seated stone bench on top (local stone is granite), so people can rest & admire the view, with bowl (have a glazed ceramic one might do) on shady side for animals (with climbing ridges for small ones that fall in — seen too many drowned) & water-draining seat, and inscription on back. (E. longiflora decoration wherever — ends?) Also hoping for carefully selected local small shade tree at right position for hottest times. Or *maybe* peppercorn, but needs more distance. For *real* fancy stuff, they could drag a lump of Pyrmont sandstone — there are some in my backyard, or use a rough chunk — up, flatten the top to a slight skillion (water-shedding) & prop it in a convenient spot nearby on the hillside for spreading a small picnic while you're sitting there. Can't work out a place for chunks of the fossil-rich mudstone found under the sandstone layer, it's too soft to leave exposed for more than a few years.

If the council isn't keen, well it'll all have to go up near the rocky summit, tucked into the dry? sclerophyll woodland. Should blend in well, esp. if they do the 'old paint the new stone with milky water' trick to get the granite scungied up.)

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[permalink][comment] - posted by Mez @ 11/21/2009 04:09:00 am
Sunday, November 08, 2009
 
Chemotherapy + Gripe update

Wherein Much Tedious Matter is Related
Hoo boy, whatta *fun* few weeks!

Last gripe was a few days after start. Survived a week or so more on water, peppermint tea, watered juice, watered stock, crystallized ginger, barley sugar & some mints. (Don't know why I forgot Gatorade powder I keep to make up into drink for just such emergencies.)

Seemed to stabilize, so l tried adding jelly, plain rice, rice noodles & dry crackers, e.g Ryevita (not all at once) to existing diet. Found only small amount of solids was tolerable. Could take more as long as each serving was small, so I would divide a meal and eat across a longer time. Could be that stomach was shrunken, but also having trouble swallowing. Worrying. Too sick sometimes to get out at all. Had to postpone tests, therefore chemotherapy, a week.

After not being able to get beyond that stage without prostrating myself, reading up on side-effects & discussing it, I tried stopping the oxybutrynin (pill suggested by non-cancer specialist). Improved (was able to do CT scan & blood tests), but weakness, tiredness, low stamina persisted. Never fully well. Also, non-cancer symptoms being slightly improved by pill came back.

Mixed feelings that the tests showed 3 x usual blood calcium. It was coming out of my bones, like osteoporosis, which might account for some of my backaches. Also makes you feel dreadful, which fitted well. Pausing chemo & taking new megestrol tablets to "push the calcium back into" my bones.

Touch worried that the cancer is getting stronger. Been taking new pills & feeling better, I think.

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[permalink][comment] - posted by Mez @ 11/08/2009 09:14:00 pm
Friday, October 16, 2009
 
Chemotherapy + Gripe

NOTE: Skip this to avoid whinging, complaining & yukkiness.

Think I've washed most of the cytotoxins and their accompanying protective drugs out, as far as possible, so started on the new drug from specialist.

Eating as healthily as I can manage, with fresh fruit & juices, vegies, fish, organic meats & milk, nice bread, etc. Have the best emergency low-prep foods I can manage — low-processed frozen food, parboiled rice, dried pasta from different grains. There's a few made-up "boil in the bag" meals that don't need freezing & some canned stuff in case of times when I just can't manage anything more.

Near low-immune part of cycle, so I'm doing things like throwing out any slightly-suss food, rinsing plates & utensils in boiling water, cleaning surfaces, using different sets of rubber gloves for handling different stuff, washing gloves in disinfectant, washing my hands with sanitizing stuff before eating, or after toilet. Being extra careful not to get nicked or bruised, staying away from crowds.

So WHY am I exploding hydrogen sulphide gas from both ends like a locomotive blowing steam!?!?!? Diarrhoea for about 24 hours. Now this morning, without more food today than some ginger to try and settle stomach, brought up half a litre or so of bright yellow bile. Bleurgh.

Is it new drug? Did I pick bug up in Rehabilitation Unit, where they had gastro going round erlier? Was food more suspicious than I suspected? Or what? How?

Just what I need when I'm already weak & tired & really low & washed out. Bleah.

And I definitely don't want to take this in to sick friend, or his partner. Will try some peppermint tea soon. Maybe barley sugar to keep up energy.

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[permalink][comment] - posted by Mez @ 10/16/2009 10:46:00 am
Wednesday, October 14, 2009
 
Friend's Stroke: some wonderful news
I haven't been too well, so haven't written much, and, worse, haven't been to see my friend as much. So it was great first to see him with a new tracheotomy that meant he could put a finger over the tube and speak, and in a separate room.

Then they removed the trachie and the nasogastric tube altogether! Talking! Started him on fluids; soup, yoghurt, etc; then puree/mashed meals. Now he's out of the hospital building, over in Rehabilitation Unit — same building where I was in hospice care, on floor above. So back to shared ward.

If you've seen 2001: A Space Odyssey, the mashed meals remind me of the coloured goo in squares on a white rectangular divided plate that Poole and Bowman ate on the Jupiter. Except they are served out by what may be an icecream scoop and the plates are round.

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[permalink][comment] - posted by Mez @ 10/14/2009 03:31:00 pm
Saturday, April 11, 2009
 
QueryFAIL: Responding to some of the discussion
[This is still too long, but I can't get blogger's code to use "expanding posts", so you only see the full entry if you go to its separate page, to work on my blogs.]
From Making Light: On QueryFAIL
nielsenhayden.com/ makinglight/ archives/ 011160.html
A summarised summary by Jim Macdonald, Making Light moderator
Apparently a group of agents designated Thursday, the 5th of March, 2009, as official Queryfail day. Throughout the day they’d Twitter those little 140-character descriptions of the worst queries they read (either that day, or had ever gotten in their careers).
"A group of online agents, book editors and periodicals acquisition editors are posting about their queries in real time. The idea is to educate people about what exactly it is in a query that made us stop reading and say “Not for me.” We’re being very careful not to include personal identifiers of any kind. The idea isn’t to mock or be intentionally cruel, but to educate."
To what should have been no one’s surprise, authors who found out about it got upset ... Amid stories of authors planning to boycott the agents who took part in the first Queryfail, a second Queryfail is apparently being planned for the end of the month.
"Last week, literary agents blogged about failed queries on Twitter—generating a query fail feed, an agent fail thread, a GalleyCat post, and an emotional debate."
and
"after hearing from several writers who were upset by the event, I have removed the specific entries. Instead, I’ll focus on what I learned by following QueryFail.

I apologize to those writers who felt disrespected. My intention in reposting was to share what I thought was good information. I still think it’s good information. But if you know me personally, you know I’m an empathetic soul and I don’t wish to cause another writer distress."
See also: AgentFail, WriterFail.
My comment (#103) on one aspect of this discussion:

Cat Meadors (#93) "Don't be crazy" isn't at all useful, and seems to be what 99% of the "advice" boils down to. Crazy people won't listen, and non-crazy people don't need to.)

Help with defining or examples of crazy and non-crazy, and how one thing can be seen as both in different circumstances could be very useful, though Miss Snark (misssnark.blogspot.com) could be a better source.

Now I think I'm 98-99% non-crazy; feedback says maybe only 90-95%. So I've had to, with much struggle and still not always successfully, modify my (identifiable) public behaviour, writing and media output to make it more acceptable. I am rather angry and bitter about that, still sensitive on certain points — another bit that needs to be controlled (so I can understand, if not accept, some reactions). Honest feedback, even overhearing you being criticised between two other people, can be useful, if hurtful.

Many times I've heard people being mocked, called crazy, weird or otherwise unacceptable for expressing thoughts or behaving in ways I've found truthful or very understandable. It hurts, but it does show how I need to mask and modify to be acceptable (and perhaps try to argue or express those thoughts in ways the 'mainstream', 'normal' (mundane?) culture can digest); and, sometimes, consider the rightness of my thoughts <g>.

OTOH: Lotsa crude, rude, stupid vapidity (IMO) in lotsa comments (and blogs) in lotsa places. Lotsa baaad writing. Sturgeon's Law? It's wearying to get to the good bits

[Disclaimer: I make no claim to be a good writer, and have little authorial ambition. I do like to read.]

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[permalink][comment] - posted by Mez @ 4/11/2009 04:11:00 pm
Thursday, February 12, 2009
 
Crumple Zone

Protecting my limited time and mental energy, to help retain some fingernail-edge grasp on whatever shreds of sanity I try to gather 'round me, I've had to develop, inter alia, Pedantry Crumple Zones.
I still feel shame and guilt when, seeing an error and a chance to teach and spread truth, I pass by the other side of the road. But there are so many other things to feel shame, guilt and anger about that the pedanticism is well down the priority list :)

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[permalink][comment] - posted by Mez @ 2/12/2009 01:11:00 pm

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/ . Lives in Australia/New South Wales/Sydney, speaks English. Eye color is hazel. I am what my mother calls unique. My interests are photography, reading, natural history/land use, town planning, sustainability.

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Australia, New South Wales, Sydney, English, photography, reading, natural history, land use, town planning, sustainability.